What a long day it was for the Webster Family on Tuesday! We dropped Sydney off for school at 7:30 and to the hospital for JT’s scope and biopsy. The procedure went well; Dr. Sauer gave us pictures to prove it LOL/yuk! The colon was clean and in good shape. There were definite ulcers in his stomach causing the stomach pain. The biopsy reports should be back on Friday and we’ll know then if they are a result of GVHD. Praying this is not the case.
JT had a tough time coming out of the anesthesia and after 3 hours in recovery, we managed to get him upstairs to the bone marrow clinic. While there, they drew labs and put him on IV fluids. Finally around 5:30, we were able to load him up in the car and get him home to bed where he continued to sleep until 1pm today! Thanks to my buddy, Kim who sat with me and helped me juggle the day!
He still is feeling pretty bad, but I’ve got him sitting up and sipping water right now. Lab results indicated some stress on the kidneys and unless we can get him taking 64oz. we’ll have to go back to the portable IV fluids at home. We talked awhile about the leg pain when JT was sleeping and the Doctors are now considering that it might be a neurological reaction to his Cyclosporine medication. They added a new med, Neurontin, to the mix to address this and hope that it might provide more relief than the Lortab pain medication he’s been on since our ER visit last Friday.
If JT has GVH, the course of treatment will be putting him on prednisone. This steroid comes with its own slew of side effects and he will have to remain on the Cyclosporine. If the biopsy comes back as general gastritis, then we will begin weaning him off the Cyclosporine. Needless to say, the later is our preference!
Sydney has been feeling pretty stressed out with everything. Her life is interrupted as well when we go to the hospital and she worries a lot about her brother. She is such a great daughter and I hate to see her suffer. Thanks to a couple of great friends, she has been well taken care of when I can’t be there for her and she feels comfortable opening up with them. Jim gets home Friday night. It’s been a long 20 days! Please pray for our BMT buddy, Creed. He is back in the hospital for a couple of weeks and could use your support.
xo Sabrina
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Sabrina---praying for strength for all of you, that you would be encouraged and comforted by the Holy Spirit, for safe travel for Jim as he comes home, that everything in JT's body would "calm down" and be at peace, that all his systems would function as they were created to function by God, and that He would provide you rest from your labors and renew your spirits as you wait on Him.
ReplyDeleteLove to you all!
Linda
What a wonderful job you do keeping all of us current with what's going on!That's a gift you're giving us. Rooting for a good biopsy report tomorrow. That plus Jim's return will hopefully give you an extra boost of energy. My love to all of you, Susan
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