The countdown begins! Just a couple of days left until we start this thing again! The radiation simulation last Tuesday was interesting. JT was measured, cat scanned, x-rayed and prepared for the whole body radiation they will add to his preparative treatment for the second transplant. He will be receiving radiation twice a day for the first three days that he is admitted.
Meanwhile, Sydney signed her “many” consent forms for her procedure and was able to return to school. They decided to add the medication Neupogen to her prep in addition to the iron supplements she has been taking all summer. It’s in the form of a shot that Jim or I will give to her for 3 days before her surgery. I remember taking these shots when I was going through cancer treatment and they are painful…both receiving them and while they are working to boost your white blood cells. I’m sorry she has to do it.
On a positive note, JT gave Dr. Chang his puppy dog look and got him to agree to discontinue his Lovenox shots! It’s a blood thinner that he has taken for the last two years to help ward off clotting side effects of his PNH. These were painful for him as well and caused a lot of bruising so he was very happy.
On Sunday, we have scheduled with our church to have both kids receive the Anointing of the Sick blessing. So if you happen to be thinking of us that evening, we’d love it if you could throw up an extra pray for both of them to have safe and successful procedures.
Thanks for checking on us!
XO Sabrina
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We are continuing to keep you all in our prayers. Here's to a successful second round!!
ReplyDeleteThe Hetherington Family
You are in our thoughts and hope it all goes successfully. It sounds like a very painful experience, and hopefully it will be less so soon. JT and Sydney are both heroes for being this brave and selfless. Quite admirable.
ReplyDelete-Dr. Siegel's daughter, JT's peer